Caring for a child or relative with a rare disorder such as Angelman syndrome can be challenging, with information hard to find about the disease or doctors who specialize in treating it.

As a result, parents and caregivers can easily feel isolated. Some may find it difficult to talk to friends or family who may not understand what they are going through.

Why join a support group?

If you’re a caregiver, it can be helpful to talk to other people who are also caregivers — people to whom you don’t have to explain your child or loved one’s illness. Support groups can offer a sense of community and belonging, and help you to find information about different treatment options.

To participate in our AS closed support group, please email us at [email protected] your request including name, telephone number, preferred language, child’s’ age, date of diagnosis, and aspect you desire to be supported in. We will do our best to match you with the right group of supporters.